Please register to participate in our discussions with 2 million other members - it's free and quick! Some forums can only be seen by registered members. After you create your account, you'll be able to customize options and access all our 15,000 new posts/day with fewer ads.
Very uptight today--probably the weather. It just seems like everything makes me anxious lately...not sure what that is about.
Awww, Cyn, it's more of the same. You're shouldering a heavy, heavy load, and pretty much doing it alone..... the weather doesn't help, perhaps some warm, beautiful weather, and some rest would lighten your perspective just a tad....
Rest, if you can, as much as you can, and if you can, let some of the nonessential stuff go for right now. It'll wait for you, it won't go away, I promise you that!
Wish there was some way we could lighten that load, or offer some encouragement that would help you.
If I could, I'd send a big bottle of peace and serenity your way, just to take your mind off things for a while....
Here's a big hug, just to let you know I'm pulling for you, and DH (((((Cyn and DH)))))
Good morning dear friends!
The hug was perfect TL! Much needed. Seems since DH got the feeding peg put in our whole life got turned upside down. It's so hard thinking of what to eat by myself. Nothing sounds good really. I feel a little lost regarding dinner since I use to start thinking about what we would have in the morning so I could take it from the freezer if necessary and then plan what would go with it. It's very hard to change up routines. Then when dinner time rolls around I'm really lost. I'm sure it just takes some time to adjust. My DH's tailbone has really been hurting---I guess because he sit so much now..have to look into a special pillow for that. He has no weight anymore..he looks like skin stretched over bones so I'm sure that doesn't help. But maybe the people at the ALS clinic will have some suggestions. I'll call them today! You all have a lovely day--the weather looks nice although a bit cold!
Good Morning cyn and friends. Cyn...you do need to eat.....I would suggest you make a nice homemade soup or stew at least once a week. It can be simple...chicken or beef and vegetables, either potato or pasta for the starch...you can use a box of stock....to get you started. If you do make one each week...you will have a default no brainer meal that is good for you. You cant afford to let yourself get rundown or sick!!
Sweetie, you need to eat, and eat what you like. Don't see it as something selfish because your DH can't have it with you. It's just part of taking care of yourself and loving life in spite of the situation.
Check on the area of his tailbone. It can or maybe already has turned into a pressure sore.
And let me tell you, once one occurs, it has to be watched carefully to keep under control.
The thing that has been working best for us is a very thick cream . He's gone through a variety of different kinds of pads/pillows and none of them prevent the sores.
Shifting weight from cheek to cheek occasionally helps most
Maila--you are so sweet! I will eat it's just that I have to adjust to a different routine and way of life. You are so nice to offer to feed me----you are an angel for sure! But I will eat! Yesterday DH had me stop and get a submarine sandwich and that was good. I have food here in the house it's just nothing sounds good eating it alone. And elstons and YL's ideas are good too and I know I need to eat good things--I just have to adjust. Without him eating with me it is so hard!
old-cold, I don't see any pressure sores--I thought of that but it could be down the road if we don't get a handle on it now. We haven't really tried any kind of pillows or cushions except what we have on hand here and they not anything that would be of any help as they are just throw pillows. I have found some online made just for the tailbone pain and I also called the clinic to see what they have on hand...they provide things for us at no cost to us if they have it. Waiting for a call back now.....
Please register to post and access all features of our very popular forum. It is free and quick. Over $68,000 in prizes has already been given out to active posters on our forum. Additional giveaways are planned.
Detailed information about all U.S. cities, counties, and zip codes on our site: City-data.com.
Please register to participate in our discussions with 2 million other members - it's free and quick! Some forums can only be seen by registered members. After you create your account, you'll be able to customize options and access all our 15,000 new posts/day with fewer ads.
