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So I found this slightly different video. I would guess she never appears more alert/interactive than this? Never a smile or an intentional interaction? I see what the medical staff is seeing - she looks like life is very painful for her.
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"I don't understand. But I don't care, so it works out."
(set 7 days ago)
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Originally Posted by Roselvr
I'd like to see more video. That one looks like she's waking from sedation.
Considering it appears to be recently taken, and provided by the family and the right to life website that is trying to make the case that her care should be continued - I'm inclined to believe this is the best there is.
Surely, if she had moments where she smiled and giggled, and made eye contact, someone would take a video of that.
Considering it appears to be recently taken, and provided by the family and the right to life website that is trying to make the case that her care should be continued - I'm inclined to believe this is the best there is.
Surely, if she had moments where she smiled and giggled, and made eye contact, someone would take a video of that.
Is the child in actual pain? Or is she kept sedated because she pulls at her tubes. That may be the purpose of the teddy bear next to her... to be a barrier between her hands and her face. I never had to deal with this. I was wondering if they could use a partial body or arm cast or something to keep her hands away from her face and allow her to be awake???
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"I don't understand. But I don't care, so it works out."
(set 7 days ago)
35,630 posts, read 17,968,125 times
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Quote:
Originally Posted by Sarahsez
Is the child in actual pain? Or is she kept sedated because she pulls at her tubes. That may be the purpose of the teddy bear next to her... to be a barrier between her hands and her face. I never had to deal with this. I was wondering if they could use a partial body or arm cast or something to keep her hands away from her face and allow her to be awake???
I wonder why she is still connected to the ventilator through a nasotracheal tube (from her nose to her trachea) rather than have a tracheostomy? Though tracheostomies look weird and uncomfortable, they are pretty well tolerated even by kids and are definitely a better long-term solution than what she has right now. I have cared for many babies/kids who were managed at home with a trach and a ventilator and though that is a very personal decision for a family as it is a huge commitment, it can be done quite successfully.
This child looks more alert than many of the babies I have seen in pediatric ICUs where stopping their ventilator was never even a discussion. I just don't understand how it is possible to end the life of a baby against her parent's wishes when she is not brain dead.
The issue of what I would choose for myself or my child (or what you might choose) isn't the primary issue here. The concern for me is that this family is not being given a choice. The hospital administration is making the decision for her. I have been in pediatric healthcare for many years and this is a significant move down a scarily slippery slope.
Is the child in actual pain? Or is she kept sedated because she pulls at her tubes. That may be the purpose of the teddy bear next to her... to be a barrier between her hands and her face. I never had to deal with this. I was wondering if they could use a partial body or arm cast or something to keep her hands away from her face and allow her to be awake???
The hospital says she's in pain but how can we be sure?
Her left arm has something on it so she's not able to move it like the right. The stuffed animal most likely deters her right arm movement to pull the tubes.
“We just want to have a judge that’s going to be fair and impartial and who’s going to think about Tinslee… have her at the forefront of their mind when they’re thinking about what’s best for her and how they balance that with the law,†said Cook Children’s Assistant Vice President of Public Relations Wini King.
The hospital and family were set to meet again on December 10 for an injunction hearing. That date now remains up in the air as they wait for a new judge to be assigned to the case.
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